Treatment #4

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2.18.25
All went smooth but sitting down to write this blog and having to think about treatment 4 makes me feel nauseous. After my blood draw we got to meet with Dr. Scott for the first time. He is Dr. Kasi's PA and we really liked him. He broke down my blood-work panel for us and did a deep dive into explaining all the different things they are looking at and tracking in my blood. It was very insightful and we left the meeting feeling good about how treatment is going. My bloodwork also showed that my CEA levels have been going down. We have an MRI scheduled for March 10th that will show us even more how the treatment is affecting my body and the liver. 

Immediately once they started the side effect meds I could already feel a change. When I would look down at my coloring book it felt like my eyes were bouncing and I started to get pretty tired. My least favorite part about the treatment is this medication called sinvanti- I can taste it when they do a push through my port and I cant even look at it while they are doing it because it is so gross to me. 

After they gave me the 3rd type of chemo it felt like all of my nerves were jumping around. I had Mike put his hand on my Jaw just so he could feel what I was talking about. I think they are called vasiculations.  I mentioned it to the nurse and she gave me an extra dose of the side effect medication. (so now I get 3 total doses of it)

Instead of sitting around in the chair the whole time it felt better to move around so Mike and I walked around for a little bit down the hall and back and it got my mind off of it all. The hallway walls are covered in beautiful art that local artist display and one of the volunteers helping that day had some of her artwork up so she talked to us about it for a bit. 

I went home with the 5FU bag again and this time 48 hrs later my friends Amy and Colleen came with me to get it taken off. 

I dont think I was as sleepy after this round but I felt more foggy and aside from the nausea and flu like symptoms my muscles felt like they were shriveling. I made it a point to try to eat as much as I could even if I wasnt feeling like it and I think that helped with my overall symptoms.